Update: Cross Sectional Study2016-09-25
Data collection is now closed.
Our PhD Fellow Mariela Acuna Mora was interviewed by the Council on Cardiovascular Nursing and Allied Professions. Read more here: https://www.escardio.org/Councils/Council-on-Cardiovascular-Nursing-and-Allied-Professions-(CCNAP)/News/interview-with-mariela-acuna-mora?utm_medium=Email&utm_date=8/7/2017&utm_subscriber=0035700001y0jE3AAI&utm_campaign=Councils+-+CCNAP+-+Newsletter+August
An abstract entitled “Adolescents with congenital heart disease own beliefs about their illness: illness perception and potential correlates” have been accepted in the European Society of Cardiology Congress (25-29 August 2018) Munich, Germany. Oral presentation
On march 7th 2018 we had our fourth annual meeting with our Advisory Board. Veronica Danko (patient perspective), Malene Jensen (parent perspective), Peter Nordkvist (patient representative), Kristina Berg-Kelly (specialist in adolescent medicine), Inger Ekman och Karl Swedberg (person-centered care) met the research group and discussed the project. The research group presented how far have we come.
STEPSTONES presented their research during the Society for Adolescent Health and Medicines’ Internationell conference in Washington DC, March 6-9th. The research group held a workshop called “Person-centered and Empowering Care for Adolescents with Chronic Conditions during Transition to Adulthood”. In addition, Åsa Burström and Anna Lena Brorsson presented posters about their research.