Update: Cross Sectional Study2016-09-25
Data collection is now closed.
On November 16th, our principal investigator, Professor Philip Moons, presented the project for the German Society on Transition Medicine. See link below:
An abstract entitled “Adolescents with congenital heart disease own beliefs about their illness: illness perception and potential correlates” have been accepted in the European Society of Cardiology Congress (25-29 August 2018) Munich, Germany. Oral presentation
A second meeting with the Advisory Board was held on march 1st 2017 in the Institute of Health and Care Sciences, Sahlgrenska Academy. STEPSTONES researchers, Malene Jensen, Veronica Danko, Inger Ekman, Karl Swedberg, Kerstin Ullin och Peter Nordqvist were present at the meeting.
On the 14th of November the first adolescent day was held för participants in STEPSTONES (the picture shows the preparation before the meeting). The meeting was held at Karolinska University Hospital for the participants reciding in Stockholm and amongst others, young persons with a congenital heart defect along with staff from the adult cardiology clinic…
Our PhD Fellow Mariela Acuna Mora was interviewed by the Council on Cardiovascular Nursing and Allied Professions. Read more here: https://www.escardio.org/Councils/Council-on-Cardiovascular-Nursing-and-Allied-Professions-(CCNAP)/News/interview-with-mariela-acuna-mora?utm_medium=Email&utm_date=8/7/2017&utm_subscriber=0035700001y0jE3AAI&utm_campaign=Councils+-+CCNAP+-+Newsletter+August