Update: Intervention Study2016-08-25
Recruitment is ongoing.
On march 7th 2018 we had our fourth annual meeting with our Advisory Board. Veronica Danko (patient perspective), Malene Jensen (parent perspective), Peter Nordkvist (patient representative), Kristina Berg-Kelly (specialist in adolescent medicine), Inger Ekman och Karl Swedberg (person-centered care) met the research group and discussed the project. The research group presented how far have we come.
Our PhD Fellow Mariela Acuna Mora was interviewed by the Council on Cardiovascular Nursing and Allied Professions. Read more here: https://www.escardio.org/Councils/Council-on-Cardiovascular-Nursing-and-Allied-Professions-(CCNAP)/News/interview-with-mariela-acuna-mora?utm_medium=Email&utm_date=8/7/2017&utm_subscriber=0035700001y0jE3AAI&utm_campaign=Councils+-+CCNAP+-+Newsletter+August
Recently, the principal investigator of the STEPSTONES-CHD project gave 2 presentations on transition. The first was given at the Congenital Heart Campus, in Ortigia, Sicily on May 24th, with the title “The Stepstones project: How to optimally transition adolescents to ACHD care?”. The second presentation was given at the 29th annual international symposium on congenital…
Philip Moons and Ewa-Lena Bratt were invited speakers during “Barn vecka” in Västerås, 23-27 April.