Consortium

Research group

STEPSTONES is a collaboration project between researchers from Sweden and Belgium.

The research group is comprised of:

• Prof. Dr. Philip Moons, RN, PhD (Principal Investigator – CHD)

Professor, Academic Center for Nursing and Midwifery, KU Leuven

Visiting professor, Institute of Health and Care Sciences, University of Gothenburg

Honorary professor, Department of Paediatrics and Child Health, University of Cape Town, Sydafrika

• Dr.Ewa-Lena Bratt, RN, PhD (Project coordinator – CHD)

Associate Professor, Institute for Health and Care Sciences, University of Gothenburg

Department of Pediatric Cardiology, Queen Silvia Children’s Hospital

• Dr.Carina Sparud-Lundin, RN, PhD (Principal Investigator – Diabetes)

Associate Professor, Institute of Health and Care Sciences, University of Gothenburg

• Anna-Lena Brorsson, RN, PhD (Project coordinator – Diabetes)

Lecturer Karolinska Institute, Sachsska Childrens’ Hospital, South hospital, Stockholm

• Åsa Burström, RN, PhD

Lecturer Karolinska Institute, Department of Pediatric Cardiology, Karolinska University Hospital in Stockholm

If you would like further information on our research group you can visit:

PhD fellows

• Mariela Acuna Mora, MSc, RN

Institute for Health and Care Sciences, University of Gothenburg

Academic Center for Nursing and Midwifery, KU Leuven

• Markus Saarijärvi, MSc, RN

Institute for Health and Care Sciences, University of Gothenburg

Academic Center for Nursing and Midwifery, KU Leuven

• Sandra Skogby, MSc, RN

Institute for Health and Care Sciences, University of Gothenburg

Academic Center for Nursing and Midwifery, KU Leuven

• Mikaela Hällström, MPH, MD

Institute for Health and Care Sciences, University of Gothenburg

Academic Center for Nursing and Midwifery, KU Leuven

Research partners – CHD

• Lars Wallin, Professor, RN, PHD. School of Education, Health and Social Studies, Dalarna University. Visiting professor, Institute of Health and Care Sciences, University of Gothenburg
• Hanna Gyllensten, PhD, RPH. Senior Lecturer. Senior Lecturer, Institute of Health and Care Sciences, University of Gothenburg. Gothenburg Centre for Person-Centered-Care (GPCC), Sahlgrenska Academy, University of Gothenburg.
• Mikael Dellborg, Professor, MD. GUCH unit, Östra Hospital / Sahlgrenska University Hospital in Gothenburg./ Department of Medicine, Sahlgrenska Academy, University of Gothenburg.
• Katarina Hanséus, Associate Professor, MD, Department of Pediatric Cardiology, Skåne University Hospital in Lund.
• Bengt Johansson, Associate Professor, MD, GUCH unit, Norrlands University Hospital in Umeå.
• Edit Nagy, PhD, MD, GUCH unit, Karolinska University Hospital in Solna.
• Annika Rydberg, Professor, MD, Department of Pediatric Cardiology, Norrland University Hospital in Umeå.
• Jan Sunnegårdh, Professor, MD, Department of Pediatric Cardiology at the Queen Silvia Children’s Hospital / Sahlgrenska University Hospital in Gothenburg.
• Ulf Thilén, PhD, MD, GUCH unit, Skåne University Hospital in Lund.
• Per Winberg, PhD, MD, Department of Pediatric Cardiology, Astrid Lindgren Children’s Hospital in Stockholm

Other research partners

• Ann Asp, Nurse, MSc, Department of Pediatric Cardiology, Skåne University Hospital in Lund.
• Michelle Björkén-Norman, Department of Pediatric Cardiology, Child and Adolescent Center, Norrlands University Hospital i Umeå.
• Sandra Skogby, RN, Department of Pediatric Cardiology at the Queen Silvia Children’s Hospital / Sahlgrenska University Hospital in Gothenburg.
• Malin Berghammer, University Nurse, PhD, Senior Lecturer at University Väst in Trollhättan.
• Linda Ternrud, RN, GUCH-unit, Skåne University Hospital in Lund.
• Görel Hultsberg-Olsson, Research Nurse, GUCH unit Östra Hospital/Sahlgrenska University Hospital in Gothenburg.
• Helena Dellborg, Research Nurse, GUCH unit Östra Hospital/Sahlgrenska University Hospital in Gothenburg.
• Mette Koch, GUCH unit, Skåne University Hospital in Lund.
• Eva Fernlund, Pediatric cardiologist, Department of Pediatric Cardiology, University Hospital in Linköping.
• Poppy Kazamia, Physician, Department of Pediatric Cardiology, University Hospital in Uppsala.
• Shalan Fadl, Pediatric cardiologist, Department of Pediatric Cardiology, University Hospital in Örebro.
• Christina Christerson, överläkare, GUCH-unit, University Hospital in Uppsala.
• Aleksandra Trzebiatowska-Krzynska, överläkare, GUCH-unit, University Hospital in Linköping.

Collaborators and participating centers

STEPSTONES-ConHD is a multicenter project between four university hospitals with specialist clinics for young people with ConHD and both pediatric and adult care (Grown Up With Congenital Heart Disease = GUCH)

The following centers are involved in the project

• Department of Pediatric Cardiology, Queen Silvia Children’s Hospital in Gothenburg
• GUCH unit in Östra Hospital / Sahlgrenska University Hospital in Gothenburg
• Department of Pediatric Cardiology, Skåne University Hospital in Lund
• GUCH unit in Skåne University Hospital in Lund
• Department of Pediatric Cardiology, Astrid Lindgren Children’s Hospital in Stockholm
• GUCH unit in Karolinska University Hospital in Solna
• Department of Pediatric Cardiology, Norrland University Hospital in Umeå
• GUCH unit in Norrlands University Hospital in Umeå
• Department of Pediatric Cardiology, University Hospital in Linköping
• GUCH unit, University Hospital in Linköping
• Department of Pediatric Cardiology, University Hospital in Örebro
• Department of Pediatric Cardiology, University Hospital in Uppsala
• GUCH unit, University Hospital in Uppsala

Research partners – Diabetes

• Martina Persson, Senior consultant, MD, PhD, Associate Professor in Pedatrics, Karolinska Institute. Department for diabetes and endocrinology, Sachsska Childrens’ Hospital, South hospital, Stockholm

Other research partners

• Elisabeth Jelleryd, Dietician, Astrid Lindgrens hospital, Karolinska University Hospital Huddinge and Solna, Stockholm
• Sofie Velander, RN, Children’s diabetes outpatient clinic, Astrid Lindgrens hospital, Karolinska University Hospital Huddinge and Solna, Stockholm
• Lisa Odhagen, RN, Children’s diabetes outpatient clinic, Astrid Lindgrens hospital, Karolinska University Hospital Huddinge and Solna, Stockholm

The following centers are involved in the project

• Children´s diabetes outpatient clinic,  Astrid Lindgrens hospital, Karolinska University Hospital  (Huddinge and Solna), Stockholm
• Children´s diabetes outpatient clinic, Sachsska Children´s Hospital, South hospital, Stockholm
• Adult diabetes outpatient clinic, Karolinska University Hospital, Huddinge, Center for diabetes in Stockholm, Ersta hospital, South hospital, Danderyds hospital, Södertälje hospital

Advisory Board

• Veronica Danko – Patient perspective
• Malene Jensen – Parental Perspective
• My Huotarinen – Young Diabetes
• Peter Nordqvist – Secretary of Swedish Children Heart Association and honorary doctor at the Sahlgrenska Academy, University of Gothenburg.
• Kristina Berg Kelly – specialist in adolescent medicine. Associate Professor in Pediatrics at the University of Gothenburg.
• Inger Ekman – Professor, RN. Person-centered care. Centre Director of the Centre for Person-Centred Care (GPCC), University of Gothenburg.
• Karl Swedberg – Senior Professor, MD. Department of Medicine, Sahlgrenska Academy at Gothenburg University.
• Kerstin Ulin – Senior Lecturer, RN. Institute of Health and Care Sciences, Sahlgrenska Academy at Gothenburg University.

Funding – CHD

Swedish Heart Lung Foundation

Swedish Research Council

Swedish Research Council for Health, Working Life and Welfare

Swedish Children’s Heart Association

Sahlgrenska University Hospital Funds

Petter Silfverskiölds Memorial Fund

Göteborgs barnklinikers research Fund

Kempe-Carlgrenska Foundation

Foundation Ebba Danelius

Crown Princess Lovisas Foundation

Foundation Claes Groschinsky

Women and Health (1.6 million club)

Funding – Diabetes

Swedish Diabetes Fund

Children’s Diabetes Fund

GPCC – Gothenburg Centre for Person Centered Care